Archive for July, 2015

Be Proactive

Bonnie’s story is so powerful. She is incredible and am thrilled to have her as a friend. She is so positive and caring. She is an incredible example of what a person can do even when you face unbelievable odds. She lives on her own with her buddy Tuk a pug. She is very independent and uses the Handy-Bus to live a very normal life.

Everyone is so amazed when I tell my story that I am walking and unless I am really tired or have been over doing it, my walk is quite normal. I truly believe I as very fortunate in that my path had many extrordinary people touching my life. They ranged from incredibly caring and professional medical personnel, doctors nurses and hospital staff, to the greatest support group you could ask for, my husband, son and family members, friends and a very special lady we met on a plane who was from Moscow, RU who sent me “Prayers in Pink” and I become teary eyed every time I think of looking out of my hospital window at Mt. Rainier and see the pink clouds around the volcano as the sun rose in the very early morning. I was so excited about this beautiful sight I had to tell everyone. When I told her daughter about this sight she told me of speaking to her mother and telling her she had spent hours in the church in Moscow praying for me in pink. That’s a powerful and very important part of my life now.

A friend of mine said she didn’t understand how her sister ended up with bloody blisters on her feet and didn’t feel them. I had this happen many years ago. We had stopped in Las Vegas on our way home to my parents in Nebraska. It was a hot summer day. We decided to walk to the Mall from Circus Circus. I was wearing socks and sandals. I thought this would protect my feet. We walked back from the mall to the RV we were staying in near Circus Circus. As I stepped up in the the RV, I looked down at my foot. It looked like there was blood on my sock. When we got inside, I took my sock off and the foot was bloody and had several broken blisters. My other foot was nearly as bad.

I should have contacted a doctor, but didn’t. After all, I really didn’t know anyone there and we would be at my parents home in a couple of days. Of course once there, we didn’t seek a doctors help either. We had washed the feet and treated them with a “home remedy” that seemed to be working. Looking back and knowing what I know now about Charcot Foot, this was a really big red flag.

Have you ever had the doctor check the sensation of your feet with a small monofilliment line? Did he explain the test, or results, or the reason for the test? Mine may have, but it didn’t mean anything to me. I left feeling that everything was normal. It wasn’t. Like many with Neuropathy you don’t feel the pain or sensation you should. So you really need to be proactive with your foot care.

Keep your feet healthy. That means you do need to check your feet daily. Pay attention to the fact you may have stepped on something and check. Keep them clean and free from ulcers, calluses and infection. If you need medication to control blood sugar, or other conditions, take it correctly and get regular check ups so your healing is at its maximum. If you have Charcot Foot, having a healthy foot is extremely important because a healthy foot means you will be able to keep the foot and not likely to have it amputated. It may mean orthotics, custom shoes, other type of bracing, but you will be able to walk.

Even if walking is limited, you can maintain your independence and quality of life. Remember your feet are your foundation.

Message by the Founder Annita

Brought to you by Charcot Awareness Education Foundation

April: Recovery Really Begins

My bout with 2nd time pneumonia finally ending, and the miraculous recovery of kidney function, I knew I was well on way back to life. Praise Our Father and son, Lord Jesus. I was given the choice of staying at Providence Hospital, or Providence Health (assisted living) for rehab. The hospital supervisor (for rehab) was very straight forward (stern) about the fact they only had a few beds for rehab. People using this facility had to be ready for 8 hours of therapy. This scared me, somewhat, but I was determined to do what ever it took to get well and go home.

They said they would give me a week to see how I was doing. So I was moved to the fourth floor rehab area the next day. The work started. First thing I had to accomplish was just getting up and to set on edge of bed without getting dizzy, or falling over. I did this repeatedly for 2 days. I was managing to set up unassisted for 15 minutes.

Next was getting up early AM to brush my teeth and do a sponge bath on my own. I had to learn how to dress sitting on the edge of bed, eat breakfast. Rest for an hour, then start using a slide board to slide from bed to wheelchair and then back to bed ( I had not been fitted for the prosthesis). This was usually a 30 minute work out, then rest and have lunch. Then back to slide board practice. By the end of the week I was able to do morning toiletries – dress and use the slide board to wheelchair with minimal assistance. So, after the supervisor of rehab tested me, she was pleased at how remarkably I was doing . YES, BY THE GRACE OF GOD AND MANY PRAYERS, I DID IT.

The next week was the same routine and they added being taken to the workout equipment. They had me using the hand bicycle machine to exercise arms /shoulders and chest area. I was now using the slide board to the workout mat laying down and working several exercises to build up leg muscles. I did all this repeatedly for a week. It was amazing how quickly all body parts were responding and getting stronger.

My serenity prayers were continual, giving thanks to the Lord and to keep getting better. By the end of this 2 weeks I was operating on my own the manual wheelchair, moving from bed to wheelchair and back with the slide board. I was also moving to the workout mat with the slide board with ease.

Bonnie’s continuing story

Brought to you by Charcot Awareness Education Foundation

Assisted Living & Rehabilitation

After spending five days in ICU, and finding that I had Renal Failure (kidney’s had failed). I was placed on dialysis, possibly for the rest of my life. My mental attitude was not great. I was placed at Providence assisted living/Rehab facility. This facility was about 25 years old. The rooms held two persons and not very much room and not very private either. I was not wanting to socialize with other patients. Most were elderly with terminal aliments. I just knew this was to be my life for the rest of my days. Yes, I was very depressed.

My renal (kidney ) Doc., Dr. Gittimer was very positive that my kidneys would return to function normally. This became my continual prayer to God minute by minute. Rehab was slow, as I had all my muscles to build up after such a long time of laying in bed. But slowly through the month of March, I got stronger muscular wise. The trips to dialysis were awful. It was cold, snowy and dark. The Renal center had approximately 30 dialysis machines that were busy from 6am to 11pm. Children, teenagers and adults used the facility. It is amazing to know this machine is such a life giver, but the process to me is plain scary. I saw horrible things from some dying to a persons blood flying to the ceiling. The personnel are so well trained, and very consoling and patient. Some people are on the machines for three hours, others four, I was on the machine for 4 hours. The chairs you sit in are very comfortable, vinyl covered, recliner type. You can bring blankets, lunch or snacks. Each chair has a small TV to watch.

This routine was going along through March, my 63rd birthday was March 28th. Tony and Sharon were planning a surprise birthday party for me. Well, I surprised everybody. I had not been feeling real great, so, about the 23rd of March things went down hill again. I was rushed back to the hospital with pneumonia on the 26th of March – no party for me.

Back to antibiotics, oxygen and not remembering much. Tony complained to the nurses that I was always so lethargic and they told him I was asking for pain medication continually. He asked who authorized the pain medication that often. Their reply was at the patients request. Tony got very upset and asked how I was able to decide this, when I didn’t even know who I was. After a big meeting with doctors and staff, I was not given any medication that Tony, or Sharon were not aware of. While fighting pneumonia, a marvelous God thing happened to me. My kidneys started to function, UNBELIEVABLE, I KNEW DOC GITTIMER WAS SURE THEY WOULD FUNCTION AGAIN, BUT I DON’T THINK I DID.

Amazing recovery! which I made in a few short days, and within a week I was moved to the main floor of rehab in the main hospital. Rehab started with a vengeance to get me out of that place and ready to prepare for life at home. Prayers of Thanks to God, our father, for his blessings upon me. I could see home in my future now.

Bonnie’s continuing story

Brought to you by Charcot Awareness Education Foundation

Assisted Living & Rehabilitation

After spending five days in ICU, and finding that I had Renal Failure (kidney’s had failed). I was placed on dialysis, possibly for the rest of my life. My mental attitude was not great. I was placed at Providence assisted living/Rehab facility. This facility was about 25 years old. The rooms held two persons and not very much room and not very private either. I was not wanting to socialize with other patients. Most were elderly with terminal aliments. I just knew this was to be my life for the rest of my days. Yes, I was very depressed.

My renal (kidney ) Doc., Dr. Gittimer was very positive that my kidneys would return to function normally. This became my continual prayer to God minute by minute. Rehab was slow, as I had all my muscles to build up after such a long time of laying in bed. But slowly through the month of March, I got stronger muscular wise. The trips to dialysis were awful. It was cold, snowy and dark. The Renal center had approximately 30 dialysis machines that were busy from 6am to 11pm. Children, teenagers and adults used the facility. It is amazing to know this machine is such a life giver, but the process to me is plain scary. I saw horrible things from some dying to a persons blood flying to the ceiling. The personnel are so well trained, and very consoling and patient. Some people are on the machines for three hours, others four, I was on the machine for 4 hours. The chairs you sit in are very comfortable, vinyl covered, recliner type. You can bring blankets, lunch or snacks. Each chair has a small TV to watch.

This routine was going along through March, my 63rd birthday was March 28th. Tony and Sharon were planning a surprise birthday party for me. Well, I surprised everybody. I had not been feeling real great, so, about the 23rd of March things went down hill again. I was rushed back to the hospital with pneumonia on the 26th of March – no party for me.

Back to antibiotics, oxygen and not remembering much. Tony complained to the nurses that I was always so lethargic and they told him I was asking for pain medication continually. He asked who authorized the pain medication that often. Their reply was at the patients request. Tony got very upset and asked how I was able to decide this, when I didn’t even know who I was. After a big meeting with doctors and staff, I was not given any medication that Tony, or Sharon were not aware of. While fighting pneumonia, a marvelous God thing happened to me. My kidneys started to function, UNBELIEVABLE, I KNEW DOC GITTIMER WAS SURE THEY WOULD FUNCTION AGAIN, BUT I DON’T THINK I DID.

Amazing recovery! which I made in a few short days, and within a week I was moved to the main floor of rehab in the main hospital. Rehab started with a vengeance to get me out of that place and ready to prepare for life at home. Prayers of Thanks to God, our father, for his blessings upon me. I could see home in my future now.

Bonnie’s continuing story

Brought to you by Charcot Awareness Education Foundation

Assisted Living & Rehabilitation

After spending five days in ICU, and finding that I had Renal Failure (kidney’s had failed). I was placed on dialysis, possibly for the rest of my life. My mental attitude was not great. I was placed at Providence assisted living/Rehab facility. This facility was about 25 years old. The rooms held two persons and not very much room and not very private either. I was not wanting to socialize with other patients. Most were elderly with terminal aliments. I just knew this was to be my life for the rest of my days. Yes, I was very depressed.

My renal (kidney ) Doc., Dr. Gittimer was very positive that my kidneys would return to function normally. This became my continual prayer to God minute by minute. Rehab was slow, as I had all my muscles to build up after such a long time of laying in bed. But slowly through the month of March, I got stronger muscular wise. The trips to dialysis were awful. It was cold, snowy and dark. The Renal center had approximately 30 dialysis machines that were busy from 6am to 11pm. Children, teenagers and adults used the facility. It is amazing to know this machine is such a life giver, but the process to me is plain scary. I saw horrible things from some dying to a persons blood flying to the ceiling. The personnel are so well trained, and very consoling and patient. Some people are on the machines for three hours, others four, I was on the machine for 4 hours. The chairs you sit in are very comfortable, vinyl covered, recliner type. You can bring blankets, lunch or snacks. Each chair has a small TV to watch.

This routine was going along through March, my 63rd birthday was March 28th. Tony and Sharon were planning a surprise birthday party for me. Well, I surprised everybody. I had not been feeling real great, so, about the 23rd of March things went down hill again. I was rushed back to the hospital with pneumonia on the 26th of March – no party for me.

Back to antibiotics, oxygen and not remembering much. Tony complained to the nurses that I was always so lethargic and they told him I was asking for pain medication continually. He asked who authorized the pain medication that often. Their reply was at the patients request. Tony got very upset and asked how I was able to decide this, when I didn’t even know who I was. After a big meeting with doctors and staff, I was not given any medication that Tony, or Sharon were not aware of. While fighting pneumonia, a marvelous God thing happened to me. My kidneys started to function, UNBELIEVABLE, I KNEW DOC GITTIMER WAS SURE THEY WOULD FUNCTION AGAIN, BUT I DON’T THINK I DID.

Amazing recovery! which I made in a few short days, and within a week I was moved to the main floor of rehab in the main hospital. Rehab started with a vengeance to get me out of that place and ready to prepare for life at home. Prayers of Thanks to God, our father, for his blessings upon me. I could see home in my future now.

Bonnie’s continuing story

Brought to you by Charcot Awareness Education Foundation