Archive for January, 2016

Charcot, Diabetes And Beyond

I have been quite surprised to find more and more people who have been diagnosed with Charcot Foot deformity just within the past few months. One lady came up to me at the post office just after Christmas and asked me what was the problem I had had with my feet when I retired from teaching. I explained the symptoms to her and she said that was what was happening to her father two years ago. He had to have two amputations. “What was it called?” she asked. I said, “Charcot, or Charcot Foot deformity. She interrupted saying, “That’s it, Charcot. That’s what my dad had.” ( or even Diabetic (Charcot) Foot.) Unfortunaterly he passed away after the amputations.

We plan to meet soon so I can tell you his story. Many believe Charcot isn’t high on the list of “Life threating diseases”, however, presently there are over 10 million people with diabetes that are impacted because of peripheral neuropathy and there are over thirty diseases that also involves peripheral neuropathy. I know of a man with restless leg syndrome who has Charcot and fortunately was diagnosed soon enough to avoid amputation. Most are diagnosed far too late. Many don’t handle amputation too well. So impacts their life creating other problems and adjustments, even death.

I have been asked to speak to my husbands COPD support group, as so many take corticosteroids which is second on the list causing Charcot. Once I complete my research concerning this topic, I will post a blog.

We hope to be more visible and available to meet with groups and events concerning Charcot. Until February 9 CAEF will have a Mardi Gras Float on display at our local Casino’s event. We really appreciate the opportunity they extend to 20 nonprofit foundations in Kitsap County.

Charcot Float in Clearwater Casino viewing area before Fat Tuesday Parade.

Charcot Float in Clearwater Casino viewing area before Fat Tuesday Parade.

Two of Charcot Awareness Education Foundation board members in Nebraska have had several interviews with local newspapers in their areas, even sat a Hot Air Balloon Fest and are meeting with groups educating them about Charcot.

Donations are Welcome: Join the team to educate helping those with Charcot avoid amputation. Thanks for caring. Send donations to:
Charcot Awareness Education Foundation
P.O. Box 3902
Silverdale, WA 98383-3902

This weeks article was contributed by Founder Annita Shaw
Brought to you by Charcot Awareness Education Foundation

Over 30 Diseases Make Charcot Worse

I often am asked,” What makes Charcot worse?” There are at least 30 diseases that cause Charcot to become worse and most recently I came across a gentleman that told me he was diagnosed with restless leg syndrome and has Charcot.

I asked a specialist on steroids why corticosteriod use was number two on my list of things that make Charcot worse? He said, because it depletes calcium in ones system, thus weakening the bones. My husband has COPD and corticosteroids are used a lot with this condition.

Diabetes heads the list that causes Charcot to become worse. I often spend much of my time with it as I am also a diabetic. Now that the Diabetic association calls the foot deformity problem “Diabetic (Charcot) Foot.”

The following list of diseases by Ali Nawaz Khan MBBS Riyadh, Saudi Arabia appeared in an article in emedicine on Feb. 21, 2007. I added and corticosteroid use.

  • Diabetes
  • Use of cortisteroids
  • Alcoholism
  • Trauma
  • Infection
  • Amyloidosis
  • Prenicious anemia
  • Syphilis
  • Syringomyelia
  • Spina bifida
  • Myelomeningocele
  • Leprosy
  • Multiple sclerosis
  • Congenital vascular disease
  • Charcot-Marie-Tooth disease
  • Cord compression
  • Asymbolia
  • Connective disorders, such as rehumatoid arthritis and sclerodema
  • Ehlers-Danlos syndrome
  • Raynaud disease
  • Adrenal hypercorticism
  • Thalidomide embryopathy (congenital arthropathy in offspring of exposed mothers)
  • Paraneoplastic sensory neuropathy
  • Cauda equina lipoma

restless leg syndrome

Since diabetes heads the list, diabetics need to be aware that this article says15% of the diabetic population has Charcot foot and a 2004 University of Washington study states that 1/600-700 diabetics with diabetes mellitus neuropathy has Charcot Foot. Layolia University in 2014 says 4 million diabetics in the US have Charcot and will lose their feet to amputation because they will be misdiagnosed or not diagnosed in time to save their feet. It is now stated that in just the Diabetic community Charcot impacts over 10 million in the USA.

Charcot is, apparently, difficult to diagnose and is often miss diagnosed as arthritis. One needs to find a Charcot knowledgeable professional. A podiatrist DPM, or a foot and ankle specialist (surgeon) DPM, FACFAS who is able to diagnose correctly.

Since neuropathy is a loss of sensation, one is unable to detect painful sensations. A doctor once told me a patient came into her office unable to remove his shoe and couldn’t understand why. When she looked at the bottom of the shoe she found a nail. It had gone through the shoe and well into his foot. It was removed and the shoe taken off to reveal a traumatic situation. Because of Neuropathy much goes undetected that could save the foot. Pain is a warning sign, but those with peripheral neuropathy don’t get the message. It is stated anyone with long term peripheral neuropathy will have Charcot Foot Deformity.

If you don’t have someone to help you check your feet, place a mirror on the floor that can be used to check your feet daily. Also, avoid going bare foot.

Donations are Welcome: Join the team to educate helping those with Charcot avoid amputation. Thanks for caring. Send donations to:
Charcot Awareness Education Foundation
P.O. Box 3902
Silverdale, WA 98383-3902

Message by the Founder Annita Shaw

Brought toby Charcot Awareness Education Foundation

Charcot Float for Mardi Gras

We have been working for our entire existence to bring awareness to everyone we can reach about Charcot Foot a devastating bone deteriation disease. One way we have reached people has been through the help of our local casino. Each year they sponsor 20 nonprofit foundations in Kitsap County the opportunity to create a float representing their foundation using the Mardi Gras theme. They are displayed for a few weeks at the casino. Then on Fat Tuesday in February they parade around the casino to the events center where they are judged on the set criteria.

Since there are over 1000 nonprofit foundations in Kitsap County, each nonprofit that is interested enters their name in the drawing. Winners are notified in November and given the rules and a child’s little red wagon, which is what the float is to be built on. It is taken to the casino the following January for display. The dimentions of the float are no more than 6’ tall, 6’ long and 2.5 ‘ wide.

We were selected for the first time for the 2015 Fat Tuesday parade. Picking a theme was the most difficult as Charcot doesn’t exactly lend itself to a celebration theme. Since it was at a casino I looked around and settled on a dragon as the “Tripple Dragon “ is one of the most popular machines.

Dragon's Head

Dragon’s Head

Creating it was a challenge. We spent quite a bit of time working with the people at Home Depot, settling for drier duct, which worked wonderfully. Papier mache was the medium that worked best for me to use. With the help of my husband and son, Justin, we finished it in time.
Dragon waiting for the parade to start

Dragon waiting for the parade to start

We were quite proud of it and it was very popular, but not enough to win one of the top three prizes. The casino does give each entrant that doesn’t win $500.
Because of this exposure more people are aware of Charcot Foot. Since this event, we have found even more people who are aware and more willing to talk to us about Charcot or tell us of a family member who suffers with it.. If all goes well I will be able to share their stories with you over the year.

We are about to complete our float for this year as we were selected again for 2016. No dragon this time. Donations are always welcome.

Thanks for caring. Send them to: Charcot Awareness Education Foundation
P.O. Box 3902
Silverdale, WA 98383-3902

This weeks article was contributed by Founder Annita Shaw
Brought to you by Charcot Awareness Education Foundation

Charcot Foot Deformity Fact Sheet

1/7/2016
Charcot Foot Deformity Fact Sheet

Welcome to 2016. We have had some problems with the website. Hopefully, they are solved. Thus, back to bringing you information about this devastating disease, that if caught early, one can walk normally and avoid amputation.

We are really looking forward to 2016 as we developed the Charcot Foot Deformity Fact Sheet in this posting. A diabetic nurse educator who has identified those with Charcot for many years helped us develop the fact sheet. We are looking forward to more developments in the near future.

She brought out the fact that though trauma is a cause of Charcot, like my being thrown from a horse at age 10 and landing on my feet. The major reason was developing peripheral neuropathy at a later time and then diabetes. There are over 30 diseases that have peripheral neuropathy associated with them. Long term neuropathy everyone will have Charcot.

CHARCOT FOOT DEFORMITY FACT SHEET

Annita and Bonnie and the net effect of Charcot

Annita and Bonnie and the net effect of Charcot


Charcot Fact Sheet Information

Charcot Fact Sheet Information

This weeks article was contributed by Founder Annita Shaw

Brought to you by Charcot Awareness Education Foundation